Category Archives: M.E.

Wheelchair Or Not. An Afterword.

I am sharing my friend, Phoebe’s, post below. She is a struggling with ME. I feel for her because being unwell is rotten and because I recognise a lot of what she says is true for me.

I too carried a mental image of what I should be in the world and it didn’t include being a single mum or having cancer or having to retire early due to ill-health.

High tempo secondary teaching meant I continually had oral thrush, herpes in my mouth, nose and eyes, exhaustion through a low thyroid and fear that, while my body was fighting these minor immune issues, my cancer was being given a back gate invitation to recur (they didn’t get all the pre-cancer out due to it being back against my ribs).  I think being run-down gives these diseases a chance to take hold. Additionally, the radiotherapy left my right ribs very tender and painful. I am compromised in health and finance. They go hand-in-hand.

I want to work. I like working both for the challenge and the social aspect. It’s good to be part of a team. I simply need to work in an environment that allows me time to recuperate if blisters erupt. It doesn’t take long for my body to heal if it gets a quick response from me and I let it rest a little.

I am planning on making more of my writing skills through publications and workshops/talks. Maybe my new novel, The Organ Donor, which I’m editing just now, will bring in some money. I hope so. Maybe the Playwrights’ Studio programme will open a new avenue of productivity and pay.

Moreover, I love yoga for restoration – Yin yoga – and I hope my reputation as a specialist in that will grow. I start at the Eastgate Anne Younger Studio in October with Yoga Zone. Tutoring is an option.  Borders Youth Theatre may need my services. And I need to sell my home of twenty-four years.

Unseen illness is more common than you think. Like Phoebe, I look well. For that, I’m grateful. And for the massive support I’ve had from school, the council, my family and friends I am very thankful. Something is going right!

me by David